Somehow I knew from the beginning. I had a very strong impression even before I conceived that something was wrong with this baby. Because of this baby, my little family has come to a detour on our journey together and we are not retreating. I hope and pray we will become better people for it.
The Diagnosis
On Tuesday of last week I went to the doctor's office for a routine five month ultrasound. I went by myself. My doctor checked and measured baby's body parts. Everything was fine until he came to baby's head. For some reason, it just didn't look right to him. I was sent to a perinatologist who confirmed my doctor's suspicions. Everything was perfect about our baby's body from his toes to his nose. However, he suffers from a lethal condition called anencephaly. The crown of his head is malformed and is missing a life-sustaining brain. If he does make it to term he may be stillborn or he may live a few minutes or days.
Mommy's nose?
Full face
Sophie's Butterfly
Sophie's Letter
Fleeting Moments... I wrote that poem down and put it in your box before I mailed it. I thought you must have received it because of the name of this blog. Judging by your email and Conrad's comments about waiting for the jewels I'm guessing you haven't read a word I wrote yet. Hmmmm We still think alike even across the ocean. I am so glad you started this. I love you!
ReplyDeleteNo, I haven't seen it yet. I can't wait to read it though. I love your poetry. The moments we have with our children really are fleeting moments though, aren't they? Every one is precious.
ReplyDeleteNot my poetry... it is one I memorized when we were roommates. You'll probably remember when you see it. You heard it enough. You will have to help me with Fisher's middle name. I was wondering what that was on the url address after Fisher. I didn't know it was part of his name... I imagine it will be difficult to learn but will sound wonderful.
ReplyDelete